Connecting all the Pieces
September 21, 2014
I was recently asked by a friend how Robert’s pulmonary issues are connected to his seizures.I thought this was a terrific question and one I have been trying to...
A Gratitude Reminder to Myself
March 19, 2014
Things seem a little out of control in my caregiving world right now. Grateful for caregiving friendsWe have mood swings, difficulty walking and cranky...
Muscle Weakness on twitter
“@512southmain: People w/ MD often develop cardiomyopathy, heart muscle weakness, b/c of a deficiency of dystrophin. #MDAawareness” #ZTA